In 2009, our daughter, Morgan was diagnosed with Acute Lymphoblastic Leukemia (Philadelphia +). The diagnosis came after an emergency room visit following a week of weight loss, fatigue, bruising, and pain. For the next 3.5 years, Morgan underwent extensive treatment that resulted in many hospital admissions, and clinic visits. Although the outcome came in the form of remission, Morgan encountered many severe side effects from various chemotherapy’s along the way, including neurotoxicity & pulmonary arterial hypertension (PAH) . The neurotoxicity left her speech, hand coordination & mobility impaired. Although these symptoms generally reverse within the first 6 months, Morgan continues to struggle with them significantly on a daily basis, today.
June 2013, Morgan was diagnosed with pulmonary arterial hypertension(PAH) after being found with a distended abdomen, and shortness of breath. PAH is a serious, potentially fatal disease that effects both the heart and lungs. Those that are diagnosed with this disease, typically have to be treated with intravenous medications 24 hours a day, 7 days a week…for their lifetime. In Morgan’s case, the oral chemotherapy that she was on at the time, was to blame. Thankfully, once it was stopped, Morgan’s heart and lungs fully recovered after a year of treatment for the disease. Therefore, not further treatment was needed. Considering that we were expecting for her to receive treatment for the rest of her life , we were thrilled!
For the next 5 years, we as a family, adapted to our new normal . That is, until June 2018. It was then that we learned that the leukemia had returned, and that Morgan would be facing treatment, once again. With the previous side effects she had encountered in mind, we were fearful, to say the least. Since that time, Morgan has had biweekly clinic visits, several hospital admissions, multiple blood transfusions & bone marrow biopsy’s, daily medications to include chemotherapy, radiation for a chloroma that was found above her left eye, and immunotherapy.
To say that, our daughter, Morgan Watson is a fighter, doesn’t quite express that which is in my heart. She is a champion! A warrior! A hero! And, as her mother, I could not be more proud to walk along side her on this journey. For I am better for having the opportunity to do so!
To follow Morgan Watson’s journey, please visit her blog at http://www.morgannicolewatson.com. Be sure to like her Team Morgan Facebook Page, https://www.facebook.com/Team-Morgan-1965696367072741/ also. Thank you!